God, AIDS, Africa & HOPE

pensée of a Catholic priest

Bridging continents

Fr Wim Lindeque, HOPE Goodwill Ambassador Katlego Maboe , Fr Stefan Hippler with Children of the Manenberg Afterschool Development Centre, a partner organization of HOPE Cape Town in Manenberg.

Preparing for my next trip starting in 2 days to Europe I also have to see to the talks I will give, the PowerPoint I will design to bolster the words spoken and to give color and pictures supporting the imagination of those listening and interested to know more about the work of HOPE Cape Town. The longer I am in this sort of business to connect different worlds I realize how difficult it has become to bring one world to another and to make sure, words are understood in the sense they are intended.

Yes, we speak the same language, we use the same words, but the framework of thinking, the weight of education and upbringing, the scenarios of real life experience seems sometimes so far away from the life presented in a talk or workshop.
How to bring the despair of a family living under the poverty line to somebody who has never experienced hunger?
How to bring the cold and the wet of a Cape Town winter day in Blikkiesdorp into the warm German homes?
How to explain the plight of not knowing what the day will bring in the Cape Flats and who will lie shot death in the crossfire of the gangs later that day in the dark morgue of Cape Town?
How to balance the hopelessness of so many South Africans against the possibilities and the beauty of a country rich on resources but suffering under a corruption so obvious that it hurts – with no European logic left to explain that people don’t rise up and stop allowing the abuse of those capturing the state entities.

Blikkiesdorp – semi-permanent housing close to the airport

Besides the difficulties to bring the world of Africa to Europe – or even the USA – there is also the way to fund-raise a complete different one. Perception how to assist and help is different in Europe compared with Africa – and once again completely different in the USA. So whatever you do, one has to reflect and think clearly who are the people one wants to address and how to creep in their minds and hearts and connect the dots so far away from each other.

Being a small organization in Africa, but connected with two other continents is a constant challenge – times of pure charity for those in far away Africa as I have known in in my childhood are gone – and I guess this is good like it is.
Solidarity, love of the neighbor and the stranger as requested by most religions need in our days strangely lots of translation work – the global village has quite some gaps to fill to make the connection a solid and understandable one.

But be it as it is – the challenge is on for me for the next 4 weeks to bring Blikkiesdorp, Tygerberg Children’s Hospital and it’s people, family and kids and also those of our partners in Manenberg and Delft to all those who are willing to listen, to learn and to connect – in different ways, with different possibilities – but at the end as a blessing for all being touched by the work of HOPE Cape Town.

 

Munich – Presentation to the Wirtschaftsbeirat of Bavaria

Filed under: Africa, HOPE Cape Town Association, HOPE Cape Town Association & Trust, HOPE Cape Town Trust, HOPE Cape Town USA, Networking, Reflection, Society and living environment, South Africa, , , , , , , , , , , ,

Signs of hope – remission without long-term treatment

At the recent conference of the International Aids Society in Paris it was a topic hotly discussed by academics, researchers and representatives of NGO’s:

A 9-year-old South African child diagnosed with HIV when he was 1 month old has been in HIV remission for 8½ years — without regular treatment. This is the first reported case of a child controlling their HIV infection without drugs in Africa and the third known case globally. The related research was conducted among others by Prof Dr Mark Cotton, board member of our HOPE Cape Town Association.

Soon after diagnosis, the child was placed on antiretroviral treatment, or ART, for 40 weeks, at which point treatment was stopped and the child’s health was monitored. Blood tests in late 2015 revealed the child is in HIV remission, meaning levels of the virus in the blood are undetectable using standard tests. Subsequent testing of samples dating back to the child’s infancy confirm remission was achieved soon after treatment was stopped. Treatment was paused as part of a larger research trial investigating the potential for early ART to decrease infant mortality and cut the need for lifelong treatment among newborns infected with HIV. “This is really very rare,” said Dr. Avy Violari, head of pediatric clinical trials at the Perinatal HIV Research Unit at the University of Witwatersrand in South Africa. Violari is the child’s doctor and presented the findings at the 9th International AIDS Society Conference on HIV Science in Paris

The child, not identified, was part of a study known as the Children with HIV Early Anti-retroviral Therapy, or CHER, trial, conducted in the years 2005 to 2011. More than 370 infants infected with HIV were randomly assigned to immediately receive ART for either 40 weeks or 96 weeks. A third group received no immediate treatment, but instead was looked after according to standard guidelines at the time. The CHER trial set out to investigate whether mortality rates could be reduced, but also whether earlier treatment could keep children healthy enough to enable them to come off treatment for certain periods. “We were hoping to make it a slower-progressing disease,” said Violari.

The study found mortality decreased by 76% and HIV disease progression reduced by 75% among the infants who received treatment immediately, for 40 or 96 weeks. The group receiving standard treatment saw an increase in mortality based on interim results, so that arm of the trial was stopped early. But virus levels in the 9-year-old case remained and remain undetectable. “The child is the only child showing remission,” said Violari. “We cannot see virus in the blood … we can see fragments of the virus in the cells,” she said, adding that these fragments appear not to be able to replicate, for now.

The South African child is the third reported case of long-term HIV remission in a child after early, limited treatment with antiretroviral drugs.

The first case was a Mississippi baby, a girl born in 2010, who received ART just 30 hours after birth until she was 18 months old, at which point HIV remission was achieved. The baby sustained remission for 27 months, until 2015, when she rebounded and the virus was found in her blood, crushing hopes that this approach could be the route to a “functional cure” for HIV. Next came the 2015 case of a French teenager, now 20, whose mother was HIV positive. The French child was given antiretroviral treatment soon after birth, stopped treatment at age 6 and has maintained undetectable levels of the virus in her blood since.

“We are delighted and excited by what happened with this child … we need to extrapolate from this to the benefit of other children on antiretroviral drugs,” said Prof Mark Cotton, Professor of Pediatrics at Stellenbosch University in South Africa, who co-led the study. “Africa is still the epicenter of the epidemic and more babies are acquiring HIV than anywhere else.”

Cotton hopes his team presenting these results will boost morale, both among cure researchers and those managing treatment programs for children across the continent.

More links:

Hope for future HIV cure revived
It is really very rare
Without drugs

Filed under: Africa, HIV and AIDS, HIV Treatment, HOPE Cape Town Association, HOPE Cape Town Association & Trust, Medical and Research, South Africa, , , , , , , , , , , , , , , ,

IAS conference 2017

Fragments of thoughts and impressions

It is my first IAS conference I have attended and compared with the World Aids conference it is a smaller crowd: round about 6000 people from all over the world coming in Paris together to discuss developments in the fields of HIV and Aids.

The first impression is that the conference is much more academic and discerning – it feels that most talks and presentations are indeed on a much higher academic level then at local Aids Conferences or the big world conference.

I am staying at a hotel outside Paris in Nanterre a commune in the Hauts-de-Seine department, the western suburbs of Paris. It is located some 11 km north-west of the centre of Paris. It feels strange – and from the beginning I can feel people have to live in a way which does not support human interaction – it feels cold, just doing the job of housing people without consideration on the human desire to live in a nice and friendly environment. It’s a sort of shock for somebody living in South Africa – it is strange but it feels like as soul-less place. The hotel is situated on top of a commuter train tunnel and station – every now and then one can feel the coming and going of a train while laying in bed.
So I guess all is there to sustain living and working, there are high rising buildings and all kind of services, but the thought I take with is that I can understand such suburbs create problems and even violence.

The mix of people here is amazing – mostly and certainly from the African region of Algeria, Tunisia and Morocco – it feels non-European in a European way – figure it out what it means.

And travelling to the conference centre – using the train and the metro – being part of a huge crowd in the morning and evening entering and exiting the dark alleys of the underground world – being part of the endless movements of people pushing their way through the crowd to reach their daily destiny – it is breath-taking – but not in the usual sense of the word. I definitely recall all my blessings living with some space and lots of day light in South Africa.

The conference itself is for a non scientific person sometimes difficult to follow – but I guess it is not about the exact details of every molecule one has to understand, the sheer feeling of understanding the principle – the idea behind all the details – the sometimes keen thoughts and trials and errors are a fascinating mental adventure – it stimulates my brain and forces me to read and study and “google”  – I have to admit that is a great experience to be beamed for a while into an environment really challenging you on knowledge and understanding.
But I believe that people running organisations must have at least a grasp about the background work done and the driving forces behind new developments before they reach the grass-root scene to be put into practice. Fruitful communication, bridging the gap between science and grass-root as HOPE Cape Town is trying to achieve on a daily base means for those in charge constant learning and communication with all spheres of their work environment.

Last but not least it was great meeting people from other countries and engaging in discussions – learning from each other and about each other and feeling the compassion of trying to rid the world of a viral onslaught. And yes, there is of course also lots of business – lots of calculation, but even there, you very often sense that those being employed in the big pharmaceutical companies understand that there is humanity needed in business. The connectivity of the global village, the threat that a virus can easily come and bite those far away helped indeed to change some of the attitudes which governed such entities a decade ago. Surely there is still lots to optimize and clarify – a balance must be put into place between commerce and humanity but I guess the battles of treatment have brought some clarity and movement into the field. Well, a watchful eye seems to be always necessary when it comes to that topic.

I will leave Paris tomorrow with lots of new understanding about the work done in the laboratories of this world. I leave proud knowing that our very board member of HOPE Cape Town, Prof Mark Cotton co-chaired the CHER study which produced one of the most published results of the conference: the child for 9 years in remission after being treated as a baby. I leave motivated knowing how many people dedicated their lives and career to fight back a pandemic which brought so much death and sorrow onto human mankind. It simply feels great to be part of a movement which has the goal to end a pandemic and give people a chance to live life and sexuality without fear. To live and to love to the utmost in their lifetime.

The only question I was wondering – how many other priests or clergy have been to this conference – not that it really matters but it would be nice to know that more of my fellow brothers are engaged on this level in a matter of live and death for millions in this world.

 

Filed under: General, HIV and AIDS, HIV Prevention, HIV Treatment, HOPE Cape Town Association & Trust, HOPE Cape Town Trust, Networking, Reflection, Society and living environment, South Africa, Uncategorized, , , , , , , , , , , ,

HOPE Cape Town USA

Since last year, HOPE Cape Town in South Africa has a sister organisation in the USA, registered and recognized as a non-profit entity. Last Saturday the board of HOPE Cape Town USA finalized the mission and vision statement which reads as follows:

 

HOPE Cape Town USA

Background

HCT USA understands that in a rapidly globalizing world a life-threatening health pandemic such as HIV/AIDS has no borders and can easily spread from one continent to another; and understands that root causes of vulnerability and marginalization are similar throughout the world, and connects people in both USA and South Africa. It also understands the danger of resistance to HIV/AIDS as well as related conditions such as tuberculosis, as experienced in southern Africa.

As a result, HCT USA believes there is tremendous value in linking with Hope Cape Town in South Africa as well as other national and international civil society organizations to learn and exchange best practice, expertise and create synergies in HIV/AIDS prevention and treatment among marginalized segments of populations.

Also, HCT USA recognizes that behaviour change reducing risk of exposure to HIV/AIDS is in great part a result of change in social norms in which education plays a large role. Focusing on changing social norms and education will reduce the effects of misinformation and stigma and help create a more accepting environment, and result in an increase demand and supply for, as well as access to and use of available treatment among the most vulnerable and marginalized.

Vision

HOPE Cape Town USA strives to improve the quality of life of vulnerable and marginalized children, youth and families affected by HIV/AIDS, and related illnesses, and help them to reach their own full potential.

Mission

HOPE Cape Town USA’s (HCT USA) mission is to assist people living with HIV, AIDS and related illnesses in the USA and South Africa.

HCT USA’s aim is to support the ongoing work of HOPE Cape Town in South Africa, reduce the spread of HIV among vulnerable and marginalized children and youth in USA and support those living with HIV.

This mission is realised by the following means

  • Advocate, fundraise and support HOPE Cape Town programs in South Africa
  • Build a body of data to understand needs, challenges and interconnections of children,
    youth and families living with HIV, AIDS or related illnesses in South Africa and USA
  • support vulnerable and marginalized children, youth and families in the USA, beginning in the Dallas/Fort Worth (Tx) area
  • Collaborate with other NGO’s in the fields to create synergies and expertise and
    interconnect globally with the aim to learn, share and optimize programs
  • Disseminate correct information, reduce misconceptions about the pandemic and so
    eliminate discrimination and create access to appropriate info on the syndrome, prevention and treatment options.
  • Change behaviour to reduce risk of exposure to HIV/AIDS by focusing on changing social
    norms and education, and reduce the effects of misinformation and stigma and help create a more accepting environment
  • Increase demand and supply for, as well as access to and use of available treatment among
    the most vulnerable and marginalized.

Filed under: Africa, HIV and AIDS, HOPE Cape Town Association & Trust, HOPE Cape Town USA, Networking, Society and living environment, South Africa, , , , , , , , , , ,

A new year for HOPE Cape Town – some thoughts…

With the 1st of March HOPE Cape Town is starting afresh in a new financial circle – the new budgets are approved and put into working, the old ones are closed and now made ready for the independent audit. Obviously the change in the currency exchange rate and so many other factors influence the outcome of budget planing – in our days it is getting more and more difficult to be as precise as possible. Therefore HOPE Cape Town is determined to follow true with the dream to have as much own capital as needed to pay all operations from the interest. It would take away the worries of constant fundraising, the constant knocking on doors which obviously also with all the reporting binds forces which could be used to aid those in need directly.

With HOPE for Babies in the maternity wards of Tygerberg Hospital the work with pregnant moms, delivering moms and then paediatric HIV to follow through with the kids infected and affected HOPE Cape Town compliments more and more its own goal to work with children from birth till they are matured in adulthood, only to come back as parents of newly born babies. The first 1000 days play a pivot role in having a holistic view and HOPE Cape Town is proud to be part of the program, the Western Province is pursuing to make sure that every newborn has the best chance in life possible in the framework of the circumstances he or she is born into. Re-visiting the Go-Box project to engage with young mothers and their babies in teaching them how to stimulate the little once with educational toys and education play adds to the bouquet of services.

Published research in national journals gives HOPE Cape Town the chance to showcase the results of best practice and to share this knowledge with those beyond the Western Cape boarders. Attending national and international conferences or, as just happened with our Program Coordinator doing an internship in a German paediatric hospital in Passau, adds to the possibilities to learn, share and being part of an international movement assisting children being infected, affected or having related illnesses or medical problems.

HIV and AIDS are topics which interconnect with so many other topics and portfolios. This lead for example to the founding of HOPE Cape Town USA – poverty, racism, the desire for Afro-Americans to find their African roots as well as infection rates are common areas to engage in a close working relationship with the USA.  Obviously also the chance to contribute as an US American to our work in South Africa is a welcomed component of this adventure. Many US students take a chance to engage with HOPE Cape Town when visiting South Africa on a field trip or excursion.

So, this small little entity called HOPE Cape Town connects three continents now: HOPE Kapstadt Stiftung in Bonn/Germany, HOPE Cape Town USA in Dallas/Texas and HOPE Cape Town Association & Trust in Cape Town / South Africa. The global family is growing slowly but substantially with all its challenges here in South Africa, but also to bring worlds together in a global village which seems in the moment so much driving apart. We hear about “America First” and all those funny slogans – HOPE Cape Town remains committed to “humanity first” and the organization will work tireless not only to serve those in need in the Western Cape but also to make sure that international understanding and care for each other stays a much-needed focal point.

Filed under: Africa, HIV and AIDS, HIV Prevention, HIV Treatment, HOPE Cape Town Association, HOPE Cape Town Association & Trust, HOPE Cape Town Trust, HOPE Cape Town USA, Medical and Research, Networking, Politics and Society, Reflection, Society and living environment, South Africa, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

12th HOPE Gala Dresden

HOPE Gala Dresden - the event to be in DresdenOctober 28th, 2017
12 days to go.

Ball of HOPE 2018

Join us @ The Westin in Cape TownMay 12th, 2018
6 months to go.

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