God, AIDS, Africa & HOPE

Reflections / Gedanken

HOPE Cape Town USA

Since last year, HOPE Cape Town in South Africa has a sister organisation in the USA, registered and recognized as a non-profit entity. Last Saturday the board of HOPE Cape Town USA finalized the mission and vision statement which reads as follows:

 

HOPE Cape Town USA

Background

HCT USA understands that in a rapidly globalizing world a life-threatening health pandemic such as HIV/AIDS has no borders and can easily spread from one continent to another; and understands that root causes of vulnerability and marginalization are similar throughout the world, and connects people in both USA and South Africa. It also understands the danger of resistance to HIV/AIDS as well as related conditions such as tuberculosis, as experienced in southern Africa.

As a result, HCT USA believes there is tremendous value in linking with Hope Cape Town in South Africa as well as other national and international civil society organizations to learn and exchange best practice, expertise and create synergies in HIV/AIDS prevention and treatment among marginalized segments of populations.

Also, HCT USA recognizes that behaviour change reducing risk of exposure to HIV/AIDS is in great part a result of change in social norms in which education plays a large role. Focusing on changing social norms and education will reduce the effects of misinformation and stigma and help create a more accepting environment, and result in an increase demand and supply for, as well as access to and use of available treatment among the most vulnerable and marginalized.

Vision

HOPE Cape Town USA strives to improve the quality of life of vulnerable and marginalized children, youth and families affected by HIV/AIDS, and related illnesses, and help them to reach their own full potential.

Mission

HOPE Cape Town USA’s (HCT USA) mission is to assist people living with HIV, AIDS and related illnesses in the USA and South Africa.

HCT USA’s aim is to support the ongoing work of HOPE Cape Town in South Africa, reduce the spread of HIV among vulnerable and marginalized children and youth in USA and support those living with HIV.

This mission is realised by the following means

  • Advocate, fundraise and support HOPE Cape Town programs in South Africa
  • Build a body of data to understand needs, challenges and interconnections of children,
    youth and families living with HIV, AIDS or related illnesses in South Africa and USA
  • support vulnerable and marginalized children, youth and families in the USA, beginning in the Dallas/Fort Worth (Tx) area
  • Collaborate with other NGO’s in the fields to create synergies and expertise and
    interconnect globally with the aim to learn, share and optimize programs
  • Disseminate correct information, reduce misconceptions about the pandemic and so
    eliminate discrimination and create access to appropriate info on the syndrome, prevention and treatment options.
  • Change behaviour to reduce risk of exposure to HIV/AIDS by focusing on changing social
    norms and education, and reduce the effects of misinformation and stigma and help create a more accepting environment
  • Increase demand and supply for, as well as access to and use of available treatment among
    the most vulnerable and marginalized.

Filed under: Africa, HIV and AIDS, HOPE Cape Town Association & Trust, HOPE Cape Town USA, Networking, Society and living environment, South Africa, , , , , , , , , , ,

World Aids Day 2016

o-world-aids-day-facebook“Leadership. Commitment. Impact” so the slogan for the World Aids Day 2016 which the world will celebrate coming week. Signs are already visible – newspapers and magazines are publishing more and more stories about HIV and AIDS, marketing prescribes for many products and messages the red ribbon – and as always on the 2nd of December some reviews will end the frenzy and hype around the pandemic. The world is getting quiet again till next year same time.

“Leadership. Commitment. Impact” – when I look around the world in our days – there is neither responsible leadership nor commitment prominently visible. The global village is rather falling apart in nations of own interest again, in the USA a racist and misogynist is elected president, in Turkey there is a dictator in the making and right-wing politicians worldwide gain popularity by only looking to create walls and distances between people. In South Africa President Zuma and the ruling party miss the boat of leadership completely and run the country into the ground if it continues like this.

Maybe we expect leadership and commitment from the wrong people and parties. Looking at the AIDS pandemic we can learn that leadership did not come from those in power. US President Reagan did everything possible to ignore the pandemic, church leaders – and some until today – were calling it the punishment of God – no, leadership came from those who were at the margins of society – in this case the gay people who organized in a committed way resistance against ignorance, demanded public attention and at the same time cared with passion and compassion about those about to lose their lives in mainly young age. Those, who were criminalized, ostracized, punished and outlawed fought the fight and brought at the end even a global political body like the UN to dedicate a meeting on a pandemic – a first in the history of the entity.

HIV and Aids brought so the attention of the global village not only to its own plight, but other sicknesses torturing those living in Africa and other far away areas as seen from Europe and the USA came under the spotlight. Even a global fond was established – another first in this regard. Maybe it needs a drama of that magnitude to bring people together – to let them forget about their own interests only and to realize the interconnections of human mankind and creation as such.
HIV and Aids are not sexy anymore – medication has stopped the immediate carnage and prolonged life in theory for all, in practice mainly for those able to afford it. Looking at the figures we see that too many people don’t have access to treatment and the infection rates are climbing disturbingly in some countries again while others – like South Africa – remain stuck on a high level. The Global Fund is struggling to maintain its impact as countries don’t honor their commitments or paying less and less believing the pandemic is under control. Looking at other viral and bacterial diseases we know that this is false hope. Life is a bitch – and evolution at work and if we don’t watch out, chances are high that we see reruns of battles we thought we have won long ago.

I wish that World Aids Day 2016 is more than just a reminder of the plight of HIV positive people. I hope that this day also serves as a beacon of hope that leadership is coming back, commitment is not only pledged but practiced – and not only in handing out medication or testing people, but also to create a surroundings and environment that let people living with HIV live without discrimination and with proper access to treatment and care in a peaceful setting. The global village needs an urgent reminder in our days that we respectfully need each other to create a future where diseases are healed, pandemics are maintained, not only those of the body but also of the hearts and souls and minds of people.

hope_logo_transparent2013

 

 

 

 

 

HOPE Cape Town is working in a holistic way to give young people living with HIV and related illnesses hope and a future.
www.hopecapetown.com / www.hopecapetownusa.com

Filed under: Africa, General, HIV and AIDS, HIV Prevention, HIV Treatment, Medical and Research, Politics and Society, Reflection, Religion and Ethics, Society and living environment, South Africa, Uncategorized, , , , , , , , , , , , ,

Durban2016 – a reflection on the World Aids Conference

durbanTomorrow ends the World Aids Conference in Durban – most probably the same way it started, with lots of encouraging words and hopes held high: treatment for all, equity, justice and equal treatment for those on the margins of the so-called society.

It was a week full of talks, presentations, encounters – a week full of demands, pleas, promises and a concert of different voices: researchers, activists, business people – all wanting to have a share and a say in the biggest HIV related global conference, taking place every two years.

The magic year 2020 and the numbers 90 – 90 – 90 were repeated and mentioned over and over: 90 % of the infected people should know their status; from those knowing 90% should be on treatment – and from those on treatment 90% should be undetectable.
Another magic year named very often was 2030 – the aimed end of the Aids pandemic.

But let’s be honest: all the tears, pleas and promises could not hide the fact: as the world stands today, we will not reach this goal. 16 out of 37 million people are in the moment on treatment – and the Global Aids Fund lacks promised money to reach all of the ones in need of treatment. The so-called “war on terror”, the financial crisis, the madness of politics let made financial pledges degrade into empty promises. The gap between what governments have pledged, what is needed and what they finally pay into the global fund is going into millions of US Dollars.

And it is not the lack of money – besides the madness of war and terror, perceived or real – it is the assumption that we have the Aids pandemic under control. It seems forgotten that every year 2 million new infections are still counted and 1 million people perish as a consequence of HIV, Aids and related illnesses.

But even the future looks bleak – conferences like this are needed: they serve as a public reminder of the injustice of poverty, sickness and premature death and the responsibilities of governments and public health sectors. They also bring people together one would not meet otherwise.
In South Africa without the activism we still would be told that HIV does not cause Aids and that antiretroviral treatment kills. Only activism, toi-toi and conferences as well as taking the government to court as civil society brought the much-needed results. But we should never forget those having died because Manto Tshabalala Msimang and others fought against common sense for a far too long time.

I am grateful that this conference brought me together with gay, lesbian, transgender, intersex people, with male and female sex workers and with drug users – encounters without the moral pointing finger – it was about meeting other human beings with their struggles like I have my struggles. It was about listening and giving everybody dignity and space to talk, to share, to explore, to feel loved and accepted. How much could also the churches learn from such encounters – understanding that the world is much more diverse and colorful than most allow themselves to accept in their small little world of daily and religious life.

Conferences like this also help to deepen the understanding of HIV and its related problems, it gives the chance to celebrate successes, mourn failures and last but not least to feel not alone in the battle against a deadly syndrome. 18 000 people from all over the world, united in an ongoing battle to save lives, to demand access to treatment, to put the fingers on human rights abuses and inhumane and unjust laws hindering our fellow brothers and sisters to live life to the fullest.

Conferences like this are energizing – they liberate one from the narrow views one automatically have working day in and day out in the same social and cultural environment – for me as a priest they open up to what “catholic” really means in the full sense of the word.

Churches are praised for their active role in the fight, but they are not very much appreciated when it comes to legal matters or global or national policy decisions. The anti-gay laws in Nigeria, the questions of sexual orientation and the women’s rights in matters reproduction are contentious issues which impact clearly also onto the fight against HIV and Aids. Sometimes it seems that moral considerations overshadow the life-and-death consequences, such stances have on grassroots level.
And obviously the long stance of my own church regarding condoms did not help either – and it took Benedict XVI’s interview to start open up this question in his acknowledgment, that if a male escort uses a condom to protect his customer it is the beginning of morality.

So lastly conferences like this put the finger on open questions, on answer demanding questions, they make the bridge between teaching, sciences, research, religion, faith and real life palpable and it’s the conversation between all parties which could bring solutions adequate to the life of the ordinary person plagued by all the challenges on a daily base.

So thank you to the organizers of the conference for making it possible once again to meet, to greet, to exchange, to laugh together, to learn together, to fight together, to discern together, to disagree with each other in the quest of the best answer possible.

Filed under: Africa, Catholic Church, HIV and AIDS, HIV Prevention, HIV Treatment, HOPE Cape Town Association, HOPE Cape Town Association & Trust, Medical and Research, Networking, Politics and Society, Reflection, Religion and Ethics, Society and living environment, South Africa, , , , , , , , , , , , , , , , , , , , , , , , , ,

World Aids Conference 2016

“What do you expect from the World Aids Conference 2016?” is one of the common questions asked in the last week. Well, what does one expect from a conference with more than 15000 participants in a country which was hit the most from the pandemic. Insights into new developments? I guess the most important factor for me is being able to get an overview first hand what is going on the world of HIV and AIDS around the globe. It is indeed the direct contact with activists and researchers where I learn the most  – while listening to their experience and insights – and which makes the trip to Durban worth time and effort. Communication, exchange, but also the feeling not to be alone in the fight against the pandemic leaves on with the resolve of continuing the work one is doing locally.

Durban 2016 is so different from the previous World Aids Conference held in Durban in 2000. At that time it was despair, hopelessness and the ignorance of politics which ruled the situation in South Africa. It was the time when HOPE Cape Town was born out of the need to stop the dying of children and parents. So Durban 2016 is also about achievements, about the millions on treatment, the figure of new mother-to-child transmission slowly going towards zero and the great feeling, that we from HOPE Cape Town have been part of this unbelievable journey of hope and frustration, often changing first place in the matter of an eye-blink.

There is still so much to do – the transmission rate in South Africa is still scary high, other countries also register more new infections and a vaccine seems to be still far away. There are still millions of South Africans dealing with stigma and discrimination on various levels. There is still so much stigma attached, so much fear and anxiety when it comes to dealing with HIV and Aids. We are definitely not there where we want to be, and the next 10 years will be crucial in the attempt to make a new generation of zero new infections a reality. Given the moment state of affair in South Africa, all the service delivery protests, corruption, political ignorance and the still wounded society there is more than a question mark to put behind the question: Will we achieve a victory?  HIV is more than a medical syndrome, it has to do with poverty, with hunger, with despair, with job creation, with investments, with intact families, with proper sex education, with the end of religious bias towards moral questions – and obviously when looking at it globally the amount of resources will depend on how governments want to spend their money. Looking at madness of violence and terrorism, racism and war it seems that HIV will continue to have only a backseat. And this might compromise the achievements reached till today.

Filed under: HIV and AIDS, HIV Prevention, HIV Treatment, HOPE Cape Town Association, HOPE Cape Town Association & Trust, HOPE Cape Town Association & Trust, HOPE Cape Town Trust, Medical and Research, Politics and Society, Reflection, South Africa, , , , , , , , , , , , , , , ,

Moral responsibilities to disclose your HIV status?

Moral responsibilities to disclose your HIV status to partners aren’t so clear-cut

By Bridget Haire

Bridget Haire is a lecturer in ethics, HIV prevention at UNSW Australia.
This article was originally published on The Conversation. Read the original article.

Sexual ethics is an area prone to strongly felt moral intuitions. We saw this play out in the good, bad and sometimes ugly commentary following Charlie Sheen’s public disclosure of his HIV status. But just how much disclosure is it reasonable to expect from a sex partner, particularly if that relationship isn’t a serious and committed one?
Common morality
There is a “common morality” precept that for sex to be truly consensual, sexual partners need to disclose certain facts to their intended partner. This includes information about sexually transmissible infections, and whether the person is in a committed (supposedly) exclusive relationship such as a marriage. Identity is also relevant. It’s generally considered wrong (and often a crime) to have sexual relations with someone by means of deception such as impersonation.
Withholding material facts or deceiving a sexual partner deprives a partner of making an informed choice about whether or not to engage in sex, given the particular social and health contexts that apply. If consent to sex was dependent on an intentional deception, it was coerced rather than freely given. This “common morality” precept is also upheld from a sexual rights perspective. This decrees that every person has the right to freedom and to protection from harm, such as those harms that accrue from coerced sex.
But there are exceptions
These principles appear fairly straightforward but can become vexed when there is risk for the person disclosing, or it’s unclear whether the facts themselves require disclosure. Consider instances where transgendered people may seek to “pass” as their non-birth gender to a sexual partner. Under the sexual rights framework, all people have a right to non-discrimination and to enjoy fundamental rights and freedoms on an equal basis to others. These fundamental freedoms include the right to sexual pleasure. If the intended sexual partner of a trans person is not accepting of transgender concepts and is entrenched in gender binaries, he or she may react to disclosure by rejection or even violence. Arguably then, it may be reasonable not to disclose transgender status given that it could involve serious risk, foreclose the possibility of sexual pleasure and expose the disclosing person to discriminatory hostility.
From the condom code to negotiated safety
When HIV first erupted in the 1980s, gay communities emphasised condoms as a universal precaution, rather than relying on the disclosure of HIV status, which was not always known.
The condom code of the 1980s was also a community-building strategy that recognised the importance of sex for gay men who had fought to have laws criminalising gay sex removed. The stigma and discrimination that had been associated with homosexuality transformed into gay liberation and pride. The condom code emphasised mutual protection rather than a division along the lines of HIV status. This avoided some of the perils of HIV stigma at a time when connection and support were of critical importance in order to care for the sick. As the epidemic matured and treatment options developed from marginally effective drugs with difficult side effects to the highly effective and well-tolerated combination therapies used today, prevention responses also evolved. From the early 1990s, gay men in couples began to make strategic use of HIV testing to determine whether or not they needed to use condoms with each other. This strategy, dubbed “negotiated safety”, was one of several ways to reduce HIV risk that involved testing. Now, HIV treatment can reduce one’s viral load to undetectable levels and reduce HIV transmission to partners. This has raised questions about whether people with undetectable viral loads can consider themselves uninfectious, and whether they are legally or morally compelled to disclose their status to partners. Interestingly, some public health laws such as the New South Wales Public Health Act require disclosure. But taking “reasonable precautions” against transmitting the infection is cited as a defence. Whether or not such “precautions” may include maintaining an undetectable viral load, as distinct from using a condom, has not been tested.
Disclosing HIV status
At the moral level, does a person with HIV have a duty to disclose her or his status to a sex partner? That depends. While sex is a physically intimate act, sexual relationships have different levels of depth and intensity, ranging from the most seriously committed to the casual and transient. Duties to sexual partners must therefore sit on a gradient. Within the most trusting and committed relationships, non-disclosure of a serious infection such as HIV would undermine the intimacy of the partnership. In casual sex situations, however, HIV disclosure may not be morally required (though in many Australian states it remains legally required), so long as some form of safe sex is practised. Some communities have long recognised that using a condom could discharge the responsibility to disclose. Arguably, maintaining an undetectable viral load could also be seen as adequate, particularly if combined with further risk-reduction measures such as strategic positioning (adopting the receptive role during unprotected sex). With the many and varied relationships that fall somewhere between the two poles, degrees of trust need to be negotiated, and not assumed. All people have duties to their sexual partners regardless of their HIV status and all people have a responsibility to be moral actors in a sexual community. Stigmatising and rejecting sexual partners on the basis of an HIV status needs to be recognised as a moral wrong that works against creating a culture where HIV can be discussed freely and without fear. The response to Charlie Sheen’s announcement of his HIV status demonstrates we have a long way to go before banishing the discriminatory and offensive reactions to HIV-positive people. It’s time to recognise the role that every sexual actor plays in creating a culture where sex is safe for all

Filed under: General, HIV and AIDS, HIV Prevention, HIV Treatment, Medical and Research, Reflection, Religion and Ethics, Society and living environment, , , , , , , , , , , , , , , , , , , , , ,

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